Spinal Muscular Atrophy
- All
- News
- Videos
-
'Not Money, But Dignity': Top Court To Comic Samay Raina On Disability Jokes
The Supreme Court today asked comic Samay Raina to consider hosting a show with those suffering from Spinal Muscular Atrophy to spread awareness about the condition
-
More Trouble For Samay Raina, 'Jokes' On Visually Impaired, Infant Flagged
Jokes by comedian Samay Raina - that allegedly mock visually impaired and a baby suffering from spinal muscular atrophy, and requiring a Rs 16 lakh injection to survive - have been flagged by the Supreme Court, which declared itself "disturbed".
-
Baby Successfully Treated For Deadly Motor Neuron Diseases While Still In Womb
The mother took the drug daily for six weeks while the baby herself was given the drug orally, roughly one week after the birth.
-
Mumbai Woman Praises IndiGo For Ensuring Smooth Travel With Wheelchair-Bound Daughter
In a LinkedIn post, Monisha shared the challenges of travelling with her 14-year-old daughter, Keya, who has Spinal Muscular Atrophy (SMA).
-
What Is Spinal Muscular Atrophy? Understanding The Signs, Complications, And Treatment
Understanding the early signs, potential complications, and available treatments for Spinal Muscular Atrophy can be crucial in managing the condition and improving the quality of life for those affected.
-
Siddaramaiah Writes To PM, Seeks Help For Treatment Of 15-Month-Old Boy
Karnataka Chief Minister Siddaramaiah has reached out to Prime Minister Narendra Modi, seeking help for the medical treatment of a 15-month-old boy with a rare disease.
-
5-Month-Old's Medicine Costs Rs 18 Crore, Father Approaches High Court
The Kerala High Court has sought response of the state government on a plea seeking medical assistance for a five month old baby suffering from spinal muscular atrophy (SMA) for which the medicine costs around Rs 18 crore.
-
Bengaluru 10-Month-Old Awaits World's Most Expensive Injection To Survive
A 10-month-old in Bengaluru, Karnataka, is fighting for her life as she waits for a medicine that costs a whopping Rs 16 crore. Diagnosed with Spinal Muscular Atrophy, type 1, the child, Khyati, needs the medicine for gene therapy before she turns 2.
-
People Raise Rs 18 Crore To Save Kerala Child From Rare Disease
In a display of human kindness for a cause of serious concern, Rs 18 crore was raised in Kerala through crowdfunding in seven days for an 18-month-old child suffering from a rare genetic disorder called spinal muscular atrophy.
-
People Donate Rs 16 Crore For Mumbai Child Who Needed Most Expensive Drug
Paying Rs 16 crore for one injection may seem like an impossible task for most people but that is exactly what the parents of a five-month-old boy in Mumbai have managed to do.
-
'Not Money, But Dignity': Top Court To Comic Samay Raina On Disability Jokes
The Supreme Court today asked comic Samay Raina to consider hosting a show with those suffering from Spinal Muscular Atrophy to spread awareness about the condition
-
More Trouble For Samay Raina, 'Jokes' On Visually Impaired, Infant Flagged
Jokes by comedian Samay Raina - that allegedly mock visually impaired and a baby suffering from spinal muscular atrophy, and requiring a Rs 16 lakh injection to survive - have been flagged by the Supreme Court, which declared itself "disturbed".
-
Baby Successfully Treated For Deadly Motor Neuron Diseases While Still In Womb
The mother took the drug daily for six weeks while the baby herself was given the drug orally, roughly one week after the birth.
-
Mumbai Woman Praises IndiGo For Ensuring Smooth Travel With Wheelchair-Bound Daughter
In a LinkedIn post, Monisha shared the challenges of travelling with her 14-year-old daughter, Keya, who has Spinal Muscular Atrophy (SMA).
-
What Is Spinal Muscular Atrophy? Understanding The Signs, Complications, And Treatment
Understanding the early signs, potential complications, and available treatments for Spinal Muscular Atrophy can be crucial in managing the condition and improving the quality of life for those affected.
-
Siddaramaiah Writes To PM, Seeks Help For Treatment Of 15-Month-Old Boy
Karnataka Chief Minister Siddaramaiah has reached out to Prime Minister Narendra Modi, seeking help for the medical treatment of a 15-month-old boy with a rare disease.
-
5-Month-Old's Medicine Costs Rs 18 Crore, Father Approaches High Court
The Kerala High Court has sought response of the state government on a plea seeking medical assistance for a five month old baby suffering from spinal muscular atrophy (SMA) for which the medicine costs around Rs 18 crore.
-
Bengaluru 10-Month-Old Awaits World's Most Expensive Injection To Survive
A 10-month-old in Bengaluru, Karnataka, is fighting for her life as she waits for a medicine that costs a whopping Rs 16 crore. Diagnosed with Spinal Muscular Atrophy, type 1, the child, Khyati, needs the medicine for gene therapy before she turns 2.
-
People Raise Rs 18 Crore To Save Kerala Child From Rare Disease
In a display of human kindness for a cause of serious concern, Rs 18 crore was raised in Kerala through crowdfunding in seven days for an 18-month-old child suffering from a rare genetic disorder called spinal muscular atrophy.
-
People Donate Rs 16 Crore For Mumbai Child Who Needed Most Expensive Drug
Paying Rs 16 crore for one injection may seem like an impossible task for most people but that is exactly what the parents of a five-month-old boy in Mumbai have managed to do.
