Rare Diseases Fund
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Rare Diseases Affect 1 In 20 Indians: Doctor Explains Why Awareness Is The First Cure
Dr Sudheendra Rao N R from the Organization for Rare Diseases India reveals that approximately 70 million are affected by rare diseases and a majority of them are children.
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UK Women Shoot Nude Calendar To Raise Funds For Friend's Rare Disease Treatment
A UK woman, inspired by a film about a naked calendar, has created her own version to raise funds for treatment for a rare disease which could leave her paralysed.
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Centre Releases Rs 40 Crore For Treatment Of Rare Diseases
The Central Government on Wednesday said that Rs 40 crore has been released to 11 centres of excellence including Rs 10 crore to All India Institute of Medical Sciences (AIIMS) for treatment of rare diseases.
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Delhi High Court Asks Centre To Transfer Unutilised Rs 63 Crore To Rare Diseases Fund
The Delhi High Court Monday said that it expected the Centre to take steps to transfer the unutilised amount of over Rs 63 crore, crowdfunded from the general public for treating an individual suffering from a rare disease, to the rare diseases fund.
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Make Digital Crowd Funding Platform For Rare Diseases "Operational": Court Cautions Centre
The Delhi High Court Wednesday said it would take action for "wilful non-compliance" if the Centre failed to make operational a digital platform for crowd funding of the expensive medicines and treatment for rare diseases.
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Rare Diseases Affect 1 In 20 Indians: Doctor Explains Why Awareness Is The First Cure
Dr Sudheendra Rao N R from the Organization for Rare Diseases India reveals that approximately 70 million are affected by rare diseases and a majority of them are children.
-
UK Women Shoot Nude Calendar To Raise Funds For Friend's Rare Disease Treatment
A UK woman, inspired by a film about a naked calendar, has created her own version to raise funds for treatment for a rare disease which could leave her paralysed.
-
Centre Releases Rs 40 Crore For Treatment Of Rare Diseases
The Central Government on Wednesday said that Rs 40 crore has been released to 11 centres of excellence including Rs 10 crore to All India Institute of Medical Sciences (AIIMS) for treatment of rare diseases.
-
Delhi High Court Asks Centre To Transfer Unutilised Rs 63 Crore To Rare Diseases Fund
The Delhi High Court Monday said that it expected the Centre to take steps to transfer the unutilised amount of over Rs 63 crore, crowdfunded from the general public for treating an individual suffering from a rare disease, to the rare diseases fund.
-
Make Digital Crowd Funding Platform For Rare Diseases "Operational": Court Cautions Centre
The Delhi High Court Wednesday said it would take action for "wilful non-compliance" if the Centre failed to make operational a digital platform for crowd funding of the expensive medicines and treatment for rare diseases.
