Rare Diseases In India
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Rare Diseases Affect 1 In 20 Indians: Doctor Explains Why Awareness Is The First Cure
Dr Sudheendra Rao N R from the Organization for Rare Diseases India reveals that approximately 70 million are affected by rare diseases and a majority of them are children.
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Southeast Asia's First Hybrid Heart Surgery Saves 29-year-old In Delhi: Hospital
A 29-year-old man underwent a rare life-saving hybrid cardiac surgery, combining open bypass with minimally invasive endovascular repair, in Delhi NCR.
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The Invisible Disorder: An Indian Mother Shares How An Ultra-Rare Genetic Disease Reshaped Her Family's Life
Norrie Disease is an ultra-rare genetic disorder causing congenital blindness, progressive hearing loss and neurological challenges. One Indian mother's journey reveals how misunderstood the condition is, and why early genetic screening and awareness
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New Study Highlights Drug Pricing And Regulation Issues In India
A new government study exposes serious flaws in India's drug pricing and regulation infrastructure. This study reveals how systemic failures impact drug pricing.
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Are Your Genes The Real Reason Why You Struggle With Weight Loss? Study Explains
A global study identifies new rare and common gene variants that contribute to obesity and related diseases.
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No Link Between Covid Vaccine And Sudden Deaths, Health Ministry Clarifies
Studies by the Indian Council of Medical Research (ICMR) and National Centre for Disease Control (NCDC) have established that there is no direct link between COVID-19 vaccination and the reports of sudden deaths in the country.
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Dangal Actor Suhani Bhatnagar, 19, Died Of Rare Inflammatory Disease Dermatomyositis: Family
Actor Suhani Bhatnagar, who played young Babita Phogat in Aamir Khan-starrer wrestling drama 'Dangal', died in Delhi yesterday.
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Indian Medicines For 4 Rare Diseases Cut Treatment Cost By Nearly 100 Times
Aided by government agencies, Indian drug companies have, in just one year, managed to develop medicines for four rare diseases that cut down their annual cost of treatment by as much as 100 times.
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Nipah Virus Outbreak In Kerala: What We Know So Far
Authorities in Kerala are scrambling to contain a rare outbreak of Nipah, a virus spread from animals to humans that causes deadly fever with a high mortality rate.
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Kerala Teenager Killed By Rare Brain Infection Caused By Free-Living Amoebae In Water
Doctors said that the main symptoms of the disease are fever, headache, vomiting, and seizures.
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Rare Brain Disease Caused By Free-Living Amoebae In Water Reported In Kerala
A case of a rare brain infection caused by a free-living amoebae living in contaminated waters was reported in the coastal district of Alappuzha in Kerala, a government release said on Friday.
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"Why Were We Kept In Dark?": Delhi High Court On Rare Disease Clinical Trial
The Delhi High Court on Wednesday expressed its displeasure over being "kept in dark" about an ongoing trial here for Duchenne Muscular Dystrophy (DMD) when it has been dealing with issues pertaining to indigenous treatment of the rare disease.
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"Once A Foe Of India...": Shashi Tharoor's Tweet On Pervez Musharraf's Death
The former Pakistan President was suffering from amyloidosis, a rare disease caused by a build-up of an abnormal protein called amyloid in organs and tissues.
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No Patient Benefitted From Help Scheme For Rare Disease: BJP MP To Health Minister
In a letter to Mr Mandaviya, Varun Gandhi noted that the 'National Policy for Rare Diseases, 2021' was launched by the Ministry of Health and Family Welfare on March 30, 2021 to save the lives of patients suffering from rare diseases.
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Monkeypox: Can Monkeypox Cause Heart Problems? Here's What We Know
Monkeypox: Myocarditis has also been reported in other monkeypox patients from the 2022 outbreak, although infectious disease specialists think it is most likely a rare consequence.
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Rare Diseases Affect 1 In 20 Indians: Doctor Explains Why Awareness Is The First Cure
Dr Sudheendra Rao N R from the Organization for Rare Diseases India reveals that approximately 70 million are affected by rare diseases and a majority of them are children.
-
Southeast Asia's First Hybrid Heart Surgery Saves 29-year-old In Delhi: Hospital
A 29-year-old man underwent a rare life-saving hybrid cardiac surgery, combining open bypass with minimally invasive endovascular repair, in Delhi NCR.
-
The Invisible Disorder: An Indian Mother Shares How An Ultra-Rare Genetic Disease Reshaped Her Family's Life
Norrie Disease is an ultra-rare genetic disorder causing congenital blindness, progressive hearing loss and neurological challenges. One Indian mother's journey reveals how misunderstood the condition is, and why early genetic screening and awareness
-
New Study Highlights Drug Pricing And Regulation Issues In India
A new government study exposes serious flaws in India's drug pricing and regulation infrastructure. This study reveals how systemic failures impact drug pricing.
-
Are Your Genes The Real Reason Why You Struggle With Weight Loss? Study Explains
A global study identifies new rare and common gene variants that contribute to obesity and related diseases.
-
No Link Between Covid Vaccine And Sudden Deaths, Health Ministry Clarifies
Studies by the Indian Council of Medical Research (ICMR) and National Centre for Disease Control (NCDC) have established that there is no direct link between COVID-19 vaccination and the reports of sudden deaths in the country.
-
Dangal Actor Suhani Bhatnagar, 19, Died Of Rare Inflammatory Disease Dermatomyositis: Family
Actor Suhani Bhatnagar, who played young Babita Phogat in Aamir Khan-starrer wrestling drama 'Dangal', died in Delhi yesterday.
-
Indian Medicines For 4 Rare Diseases Cut Treatment Cost By Nearly 100 Times
Aided by government agencies, Indian drug companies have, in just one year, managed to develop medicines for four rare diseases that cut down their annual cost of treatment by as much as 100 times.
-
Nipah Virus Outbreak In Kerala: What We Know So Far
Authorities in Kerala are scrambling to contain a rare outbreak of Nipah, a virus spread from animals to humans that causes deadly fever with a high mortality rate.
-
Kerala Teenager Killed By Rare Brain Infection Caused By Free-Living Amoebae In Water
Doctors said that the main symptoms of the disease are fever, headache, vomiting, and seizures.
-
Rare Brain Disease Caused By Free-Living Amoebae In Water Reported In Kerala
A case of a rare brain infection caused by a free-living amoebae living in contaminated waters was reported in the coastal district of Alappuzha in Kerala, a government release said on Friday.
-
"Why Were We Kept In Dark?": Delhi High Court On Rare Disease Clinical Trial
The Delhi High Court on Wednesday expressed its displeasure over being "kept in dark" about an ongoing trial here for Duchenne Muscular Dystrophy (DMD) when it has been dealing with issues pertaining to indigenous treatment of the rare disease.
-
"Once A Foe Of India...": Shashi Tharoor's Tweet On Pervez Musharraf's Death
The former Pakistan President was suffering from amyloidosis, a rare disease caused by a build-up of an abnormal protein called amyloid in organs and tissues.
-
No Patient Benefitted From Help Scheme For Rare Disease: BJP MP To Health Minister
In a letter to Mr Mandaviya, Varun Gandhi noted that the 'National Policy for Rare Diseases, 2021' was launched by the Ministry of Health and Family Welfare on March 30, 2021 to save the lives of patients suffering from rare diseases.
-
Monkeypox: Can Monkeypox Cause Heart Problems? Here's What We Know
Monkeypox: Myocarditis has also been reported in other monkeypox patients from the 2022 outbreak, although infectious disease specialists think it is most likely a rare consequence.
